When my 14-year-old son, Julian, suffered a Glasgow 3 Traumatic Brain Injury, our world changed in an instant.

For 58 agonizing days, we lived inside the pediatric intensive care unit (PICU), praying for a miracle. But when the time came for us to go home, we weren’t met with a roadmap for recovery. Instead, we were given a devastating prognosis: expect a permanent vegetative state for the rest of his life.

​Yet, as heartbreaking as that diagnosis was, the reality of what came next felt even worse. Discharged from the hospital, we found ourselves utterly abandoned by the medical system. There was no progressive care plan, no equipment guidance, and no network to help us navigate life after trauma. We were left dangling off a cliff, staring down into an abyss of the unknown.

For years, I fought to build a bridge across that abyss.

​I immersed myself in the complex webs of insurance companies, medical providers, and therapy networks.

I spent countless days learning from nurses, doctors, physical therapists, occupational therapists, speech specialists, and vision experts. Piece by piece, through relentless advocate work, I forged a path to structure a better, richer quality of life for Julian.